| submitted on January 7, 2009 6:35 PM EST |
| Name: |
Sheryl |
| Email Address: |
szeyen@aol.com |
| Comments: |
Hi! Thank you for this website. Our six month old daughter just had the same surgery done. Almost identical situation to
your son. Since you've gone before us I'm wondering if Andy required any follow up procedures after his surgery. It's a
little hard to tell from the photos (although he looks great) if there is a visible scar or not. Right now our daughter's
surgery site looks raised and puffy. Of course this is probably to be expected as she only had her surgery one week ago!
Did you do anything special to help the healing process? If you're available you can reach me at my email address. Thanks
again! |
|
| submitted on September 6, 2008 4:16 PM EST |
| Name: |
jaimy |
| Email Address: |
jaimymartinez@att.net |
| Comments: |
WoW he is so cute! my son billy has an H on his forehead. he is only 2 months old and that H is growing fast. i'm glad i found
your site, very helpful. thanks. |
|
| submitted on June 18, 2008 9:30 AM EST |
| Name: |
Sophie (Ella's Mom) |
| Email Address: |
justsoph@hotmail.com |
| Comments: |
Hi Charlene. (don't know if you remember me---we talked a few months ago about my baby's upper lip H) Just came across your
web site today. This was great! We're thinking about going to see Dr. Reinisch soon.
Sophie |
|
| submitted on August 20, 2007 3:51 PM EST |
| Name: |
KELLY |
| Email Address: |
KWHIDDON@AMERICANNATIONALBANK.NET |
| Comments: |
MY DAUGHTER HAS A HEMANGIOMA ON HER UPPER LIP TO.. ANY ADVICE?? I'M SCARED/ |
|
| submitted on March 23, 2007 9:30 PM EST |
| Name: |
Dina |
| Email Address: |
|
| Comments: |
Our daughter had surgery 1 week ago and already looks great!!! She had 2 hemangiomas, one under each eye. This surgery was
life changing! |
|
| submitted on February 20, 2007 9:52 AM EST |
| Name: |
Robin |
| Email Address: |
rdadowsk@columbus.rr.com |
| Comments: |
Wow Andy looks great! My daughter was born with a cleft lip and palate. She is 16 now and peers are starting to make fun
of her. We had a surgeon in the Columbus, Ohio area do her surgery so far. Although we are happy with what she looks like,
just seeking to see if there is something better out there for her. Dr. Reinisch kept coming up in my search as well. Do
you have any supporting comments to help me make the choice to go outside of our comfort zone. Thank you in advance for any
help. Bless you all, Robin |
|
| submitted on February 3, 2007 2:48 PM EST |
| Name: |
Shari |
| Email Address: |
smoody9976@msn.com |
| Comments: |
Our daughter also has a hemangioma; almost identical to Andy's. We have been in contact with Dr. Reinisch regarding surgery
and was hoping to talk with you more. |
|
| submitted on November 16, 2006 10:49 AM EST |
| Name: |
Miriam Bledsoe |
| Email Address: |
lctagteam@yahoo.com |
| Comments: |
Great work! We need an appointment please.
Miriam Bledsoe |
|
| submitted on November 2, 2006 10:41 PM EST |
| Name: |
nikki price |
| Email Address: |
ncp3usa@aol.com |
| Comments: |
Hi Andy, I also had surgery from Dr Reinisch when I was 4. I am now 10 years old and all better too. He is superman doctor. |
|
| submitted on August 15, 2006 2:50 PM EST |
| Name: |
Joy Dominguez |
| Email Address: |
jpdmgz@tr-isys.com |
| Comments: |
HI. Im writing you from the Philippines. My 2mo. old daughter has a nasal tip hemangioma. I have been doing research and looks
like we are going in the direction of surgery. I am seriously considering Dr. Reinisch. I hope I could email you more later
on for more info. Congratulations! God Bless |
|
| submitted on May 26, 2006 8:35 AM EST |
| Name: |
Chantell Corgill |
| Email Address: |
ccorgill@houston.rr.com |
| Comments: |
Andy looks awesome. Our 18 month daughter has a Hemangioma in the same place. We could not decide if we wanted to wait a
while or go ahead and have hers removed. After seeing how great Andy looks we have decided to pursue surgery. We have seen
one plastic surgeon here in Houston and are waiting to see another. If we don't get the answer we would like we will be contacting
Dr. Reinisch. I would love to chat with you about your experience. |
|
| submitted on May 14, 2006 4:41 PM EST |
| Name: |
Kim McDonald |
| Email Address: |
mckimb@yahoo.com |
| Comments: |
Andy is precious! His post-op pictures are unbelievable. He looks amazing! My little 2 yr. old has an upper lip and lower
lip hemangioma. We have been told by doctors to just let them regress on their own. However, we also don't want it to alter
his personality and self-esteem. We are seeing a plastic surgeon next month to possibly remove it. Your story gives us much
hope! Thanks so much!
|
|
| submitted on April 25, 2006 5:29 PM EST |
| Name: |
DeeDee Whiles |
| Email Address: |
dwhiles2002@yahoo.com |
| Comments: |
Thank you so much for sharing Andy's story. It seems so similar to ours. Our grandson was 14 weeks premature and after 100
days in the NICU, he came home to deal with yet another issue. He has a very large soft spot hemangioma that can't be surgically
removed until he is almost 2 due to the location over the fontanels. He is so precious, but most strangers only see "the
bump". I hope that eventually he can look as whole and beautiful as your Andy. Very encouraging to other NICU survivors!
We have very special miracles in our arms. God Bless |
|
| submitted on April 11, 2006 8:53 AM EST |
| Name: |
Kerri Murphy |
| Email Address: |
Rianna002@aol.com |
| Comments: |
We just wanted to let you know we LOVE your webpage! Andy is absolutely beautiful and we wish him well in all his upcoming
treatments! Love Kerri (Mom to Hannah 22 months, scalp and cerebral Hemangiomas) |
|
| submitted on April 10, 2006 1:11 PM EST |
| Name: |
Nikki |
| Email Address: |
nmc193@psu.edu |
| Comments: |
Hey Charlene just saying HI to everyone, hope everything is ok! |
|
| submitted on April 10, 2006 6:57 AM EST |
| Name: |
Pat LaWall |
| Email Address: |
lawallp@yahoo.com |
| Comments: |
Andy, I love your Nats hat!!! I bet you'd like to meet Screech.
Good luck with your surgery. You are in my thoughts and prayers daily. Your Grandma Diane is my good buddy. We talk about
you a lot.
Love, Pat
P.S. I have a girlfriend for you named Krista!!!:) |
|
| submitted on April 7, 2006 9:36 PM EST |
| Name: |
Gina and Christy |
| Email Address: |
gina0291@sbcglobal.net |
| Comments: |
Andy
We want to wish you the best of luck with your surgery. You will be in the best of hands. You are a darling little boy!
Cant wait to hear how well you did.
Gina and Christy
Christy 8yrs old VM left leg |
|
| submitted on April 7, 2006 9:18 PM EST |
| Name: |
Tracey ~ Nova board |
| Email Address: |
|
| Comments: |
Charlene,
I have a little girl with several hemangiomas. None are in as impeding his is, so no surgery is necessary at this time. But
I can understand your pain and frustration. I wanted to say good luck on the surgery. You will have my prayers on the 19th
and afterwards for a smooth surgery and recovery. Best wishes ~ Tracey |
|
| submitted on April 7, 2006 2:47 PM EST |
| Name: |
Jessica Stewart |
| Email Address: |
momsangelbaby1999@yahoo.com |
| Comments: |
Hi Andy, This is Jessica. I'm 7 year's old. I hope your surgery goes well. I will keep you in my prayer's as I have been
every night before I go to sleep. I look forward to seeing you on our vacation. Good luck! Love, Jessica |
|
| submitted on April 7, 2006 2:46 PM EST |
| Name: |
Chelsea Hein |
| Email Address: |
chfamily@yahoo.com |
| Comments: |
Charlene: the trip sounds wonderful! I'm so happy for you, Joe and Andy. I have a good feeling that everything will turn out
just fine. The hotel looks like a wonderful place to stay - especially being close to the beach. I hope you all can take in
some sights of L.A. You remain in my thoughts and prayers. Also, great job on the website. It's a nice way to keep us all
informed of Andy's progress-- even after the surgery. Looking forward to seeing more pictures posted. |
|
| submitted on April 7, 2006 2:04 PM EST |
| Name: |
Aunt Jeanine |
| Email Address: |
|
| Comments: |
Hey little newphew, this is your Aunt Jeanine. Best wishes from you cousins, Devyn and Matthew. You are such a beautiful
baby. I know all will go well with the surgery and wishing you a safe trip home. |
|
| submitted on April 7, 2006 12:58 PM EST |
| Name: |
Barbara Snyder |
| Email Address: |
barbarasnyder3@yahoo.com |
| Comments: |
Dearest Joe, Charlene, and Andy, Our thoughts and prayers will be with you on your journey to LA. We know everything will
come out alright, because God is flying with you and helping you on this special trip. We were there when you got married
and we were there on the day little Andy was born. What a lucky little fellow to have a Daddy and a Mommy to Love him so
much and give him such special care. You all are a very special family and we look forward to this all being behind you and
you can get on with your life with little Andy. Have a blessed Easter and know you will be in our prayers. We love you all.
Darrell and Barbara Snyder |
|
| submitted on April 7, 2006 12:28 PM EST |
| Name: |
Nikki Stewart |
| Email Address: |
momsangelbaby1999@yahoo.com |
| Comments: |
Hello there little Andy and to your Mom and Dad. I met your Mommy when we were just little girl's. (Maybe 3 or 4) Little
Andy, you have been a part of my heart since the day you stepped into your parent's life's. Our prayer's and love will be
with you and your parent's as you fly through the sky's to LA in search of your treatment. I'm sending my gaurdian angel (Jean)
to watch over you every step of the way. Most of all you are in God's hand's so I know you will be safe. Wishing you a speedy
recovery. Love your (adoptive) Aunt Nikki
Charlene, you have done a wonderful job with Andy's web page. The three of you are very blessed to have each other. Good
luck and God speed! Hug's, Nikki |
|
| submitted on April 7, 2006 11:46 AM EST |
| Name: |
Nicholas Horner |
| Email Address: |
Tenorboy88@hotmail.com |
| Comments: |
Hi there. You don't know me, but your grandma Miller is a dear friend of mine and I sang at your parents wedding. To be is
a Christian is to feel compassion for people you have never met. I want you to know that you are in my heart and prayers always.
I pray that God's hand will hold you in saftey through your surgery and all the days of your life. Your grandma tells me that
you have a big heart full of love, just remember a heart is not judged by how much you love but rather by how much you are
loved by others. Clearly you are very loved! God Bless and good luck to you and your parents! -Nick Horner |
|
| submitted on April 7, 2006 11:35 AM EST |
| Name: |
Scott Miller |
| Email Address: |
stm11787@vt.edu |
| Comments: |
Dear Andy,
We are so lucky to have you apart of our family. Everyone one of us has you in our prayers. There is no doubt in my mind everything
will be alright because you are a child of God. I will continue to pray that you, your mom, and your dad have a safe trip
to California and that your surgery will be a success. God bless you Andy.
Love,
Scott |
|
| submitted on April 7, 2006 11:03 AM EST |
| Name: |
Rosita |
| Email Address: |
sweetkiara12@yahoo.com |
| Comments: |
Lots of luck on the baby's surgery i'll be praying for him . |
|
| submitted on April 7, 2006 10:46 AM EST |
| Name: |
Melissa Stout |
| Email Address: |
|
| Comments: |
Congratulations on the upcoming surgery! Andy is one of the cutest babies I've ever seen.... those eyes are incredible! I
think it's wonderful that you researched things and found a treatment plan. What great parents you are! I will be thinking
of you the week of Apr.17th and look forward to seeing more pictures posted of the trip. Charlene: you'll be back in your
old neck of the woods in L.A. Take care and best wishes, Melissa. |
|
| submitted on April 7, 2006 10:06 AM EST |
| Name: |
Grandma Miller |
| Email Address: |
|
| Comments: |
Miracles happen everyday, and Andy you are a miracle. We are so happy to have you in our family (The Fronczek/Miller clan)
You have been surrounded with love and blessed with wonderful loving and caring parents. We have been praying for you since
the first day we knew you were on the way. Our prays will be with you and mommy and daddy during your trip and surgery.
We love you and thank God for sending you on a
miracle journey. Know that we will be waiting to hold you in our arms again.
God Bless you little one.
Love forever and ever, Grandma
|
|
| submitted on April 7, 2006 8:06 AM EST |
| Name: |
Kim |
| Email Address: |
khudnall@adelphia.net |
| Comments: |
Good luck to Andy and family! Dr. R is the BEST. He removed my daughter's nasal tip and scalp H and did a wonderful job.
Best wishes for a successful trip. Can't wait to see the after pictures of cute little Andy!
Take care,
Kim |
|
| submitted on April 7, 2006 4:12 AM EST |
| Name: |
clarissa |
| Email Address: |
Opster25@yahoo.com |
| Comments: |
Good luck with everything I hope i goed well.. |
|
| submitted on April 6, 2006 8:49 PM EST |
| Name: |
Ashley Higgs |
| Email Address: |
AshleyLauryn87@aol.com |
| Comments: |
Andy & Family,
I know that you will have a speedy recovery. I wish you a safe trip to California and a safe trip returning home. I know that
everything will be just fine. You are in God's hands and he will protect you for always. My prayers are with you.
Ashley L. Higgs |
|
| submitted on April 6, 2006 8:26 PM EST |
| Name: |
Katie Elis |
| Email Address: |
kgellis@adelphia.net |
| Comments: |
Hi! Best of luck to you, I know it was a difficult decision to come to. I am Janine's friend Katie, and my 7-month-old had
surgery the day before yesterday to remove a hemangioma from his eyelid/brow. I would be happy to share any pictures or information
with you if it would be helpful. Your little boy is beautiful! |
|
| submitted on April 6, 2006 5:46 PM EST |
| Name: |
Elissa |
| Email Address: |
psyelectro@aol.com |
| Comments: |
Good luck to you all! |
|
| submitted on April 6, 2006 3:34 PM EST |
| Name: |
Baba |
| Email Address: |
ginny43@verizon.net |
| Comments: |
Oh how happy Jaku and I are that our little Andy will be having surgery; we dread having to think of him going through any
pain, but we know that the outcome is worth it. Thank goodness Andy is too young to remember any of the pain. We also know
that God is answering all our prayers -- and I mean all our -- cause he is prayed for by a lot of people, and is on a few
prayer chains. Also, my hairdresser, (who has two priest brothers in Vietnam) has had them offering masses for Andy and they
will both be having a mass for him on 18 April (their time is a day earlier than ours). So we know he is in good hands and
we're so excited for the surgery to take place. |
|
